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My own blood : a memoir / by Bristowe, Ashley,author.;
"When their second child, Alexander, is diagnosed with a rare genetic disorder, doctors tell Ashley Bristowe and her husband that the boy won't walk, or even talk--that he is profoundly disabled. Stunned and reeling, Ashley researches a disorder so new it's just been named--Kleefstra Syndrome--and she finds little hope and a maze of obstacles. Then she comes across the US-based 'Institutes, ' which have been working to improve the lives of brain-injured children for decades. Recruiting volunteers, organizing therapy, juggling a million tests and appointments, even fundraising as the family falls deep into debt, Ashley devotes years of 24/7 effort to running an impossibly rigorous diet and therapy programme for their son with the hope of saving his life, and her own. The ending is happy: he will never be a 'normal' boy, but Alexander talks, he walks, he swims, he plays the piano (badly) and he goes to school. This victory isn't clean and it's far from pretty; the personal toll on Ashley is devastating. 'It takes a village, ' people say, but too much of their village is uncomfortable with her son's difference, the therapy regimen's demands and the family's bottomless need. The health and provincial services bureaucracy set them a maddening set of hoops to jump through, showing how disabled children and their families languish because of criminally low expectations about what can be done to help. My Own Blood is an uplifting story, but it never shies away from the devastating impact of a baby that science couldn't predict and medicine couldn't help. It's the story of a woman who lost everything she'd once been--a professional, an optimist, a joker, a capable adult--in sacrifice to her son. An honest account of a woman's life turned upside down."-- Provided by publisher.
Subjects: Biographies.; Bristowe, Ashley; Bristowe, Ashley.; Children with disabilities; Children with disabilities; Children with disabilities; Children with disabilities; Families.; Mothers of children with disabilities; Parents of children with disabilities;
Available copies: 1 / Total copies: 1
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Beyond the Pale : folklore, family, and the mystery of our hidden genes / by Urquhart, Emily.;
Includes bibliographical references.Like any new mother, Emily is thrilled when her first child, a daughter, is born. The baby, Sadie, is healthy and stunningly beautiful, with snow white hair and fair skin. Even the doctors and nurses can't help a second look at this magical child. But soon a darker current begins to emerge--something is amiss. After three months of testing, Sadie is diagnosed with albinism, a rare genetic condition. Emily, a folklore scholar and an award-winning journalist, is accustomed to understanding and processing the world through stories. With Sadie at her side, Emily researches the cultural beliefs surrounding albinism and finds a curious history of outlandish tales of magic, and of good and evil reaching back through time, along with present-day atrocities. In some parts of the world, people with albinism are stalked; their condition is seen to bring luck and health as well as danger and death. Investigating the different reactions, in different cultures, to those with albinism, Emily begins to see her child as a connection between worlds. Part memoir, part cultural critique, and part genetic travelogue, Beyond the Pale is a brave, intimate investigation into the secret histories that each of us carries in our genes and an inspiring and beautiful memoir about parenting a child with a disability--and building a better future for that child.
Subjects: Urquhart, Emily.; Urquhart, Sadie.; Albinos and albinism; Albinos and albinism; Albinos and albinism; Genetic disorders in children; Parents of children with disabilities;
Available copies: 1 / Total copies: 1
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My left foot [videorecording] / by Bernstein, Elmer.; motion picture adaptation of (work):Brown, Christy,1932-1981.My left foot.; Connaughton, Shane,screenwriter.; Cusack, Cyril,1910-1993,actor.; Day-Lewis, Daniel,actor.; Dunbar, Adrian,1958-actor.; Fricker, Brenda,actor.; McAnally, Ray,actor.; McCabe, Ruth,actor.; O'Conor, Hugh,1975-actor.; Pearson, Noel,film producer.; Shaw, Fiona,1958-actor.; Sheridan, Jim,1949-film director,screenwriter.; Whelan, Alison,actor.; Granada Films,production company.; Lions Gate Films,production company.; Miramax Films,presenter.; Miramax Home Entertainment (Firm),publisher.;
Director of photography, Jack Conroy ; editor, J. Patrick Duffner ; music composed and conducted by Elmer Bernstein ; production designer, Austen Spriggs ; special advisor to the production, Gene Lambert.Daniel Day Lewis, Ray McAnally, Brenda Fricker, Fiona Shaw, Hugh O'Conor, Adrian Dunbar, Ruth McCabe, Alison Whelan, Cyril Cusack.Born with cerebral palsy, the 10th of 22 children of a Dublin bricklayer and his wife, Christy Brown was doomed to life as a vegetable by physicians in 1932. His strong-willed mother's love and faith encouraged him to overcome this label. At age seven, he made a mark with chalk grasped between the toes of his left foot, the only limb on his body he could control. With this proof of intelligence, his schooling begins, and aided by his loving family, Christy learns to grapple with life's physical tasks and psychological pains. His courage and determination inspire a teacher, who lends support as he develops into a brilliant if cantankerous writer, poet, and painter. The astounding story of an artist who defeated a physical disability, degrading stereotypes, and poverty to fulfill his dreams.Canadian Home Video Rating: 14A.MPAA rating: R.DVD ; widescreen presentation ; Dolby Digital 5.1.Academy Award best actor (Daniel Day-Lewis), 1989, and best supporting actress (Brenda Fricker), 1989
Subjects: Biographical films.; Feature films.; Brown, Christy, 1932-1981.; Brown, Christy, 1932-1981; Cerebral palsied; Mouth and foot painting artists; People with disabilities; Young men;
For private home use only.
Available copies: 1 / Total copies: 1
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Differently wired : raising an exceptional child in a conventional world / by Reber, Deborah,author.;
Includes bibliographical references and index."Today millions of kids are stuck in a world that doesn't respect, support, or embrace who they really are--these are what Deborah Reber is calling the "differently wired" kids, the one in five children with ADHD, dyslexia, Asperger's, giftedness, anxiety, sensory processing disorder, and other neurodifferences. Their challenges are many. But for the parents who love them, the challenges are just as hard--struggling to find the right school, the right therapist, the right parenting group while feeling isolated and harboring endless internal doubts about what's normal, what's not, and how to handle it all. But now there's hope. Written by Deborah Reber, a bestselling author and mother in the midst of an eye-opening journey with her son who is twice exceptional (he has ADHD, Asperger's, and is highly gifted), Differently Wired is a how-to, a manifesto, a book of wise advice, and the best kind of been-there, done-that companion. On the one hand it's a book of saying NO, and how it's time to say no to trying to fit your round-peg kid into society's square holes, no to educational and social systems that don't respect your child, no to the anxiety and fear that keep parents stuck. And then it's a book of YES. By offering 18 paradigm shifts--what she calls "tilts"-- Reber shows how to change everything. How to "Get Out of Isolation and Connect." "Stop Fighting Who Your Child Is and Lean In." "Let Go of What Others Think." "Create a World Where Your Child Can Feel Secure." "Find Your People (and Ditch the Rest)." "Help Your Kids Embrace Self-Discovery." And through these alternative ways of being, discover how to stay open, pay attention, and become an exceptional parent to your exceptional child"--
Subjects: Child rearing; Children with disabilities; Exceptional children;
Available copies: 1 / Total copies: 1
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The king of Staten Island [videorecording] / by Adlon, Pamela,1966-actor.; Apatow, Maude,actor.; Apatow, Judd,1967-film director.; Aquilino, Carly,actor.; Arias, Moises,1994-actor.; Burr, Bill,actor.; Buscemi, Steve,1957-actor.; Corrigan, Kevin,1969-actor.; Davidson, Pete,1993-actor.; Powley, Bel,1992-actor.; Robinson, Keith,1976-actor.; Tomei, Marisa,actor.; Velez, Ricky,actor.; Wilson, Lou(Actor),actor.; Universal Pictures Home Entertainment (Firm),film distributor.;
Pete Davidson, Marisa Tomei, Bill Burr, Kevin Corrigan, Keith Robinson, Steve Buscemi, Maude Apatow, Moises Arias, Bel Powley, Carly Aquilino, Lou Wilson, Ricky Velez, Pamela Adlon.Scott has been a case of arrested development ever since his firefighter father died when he was seven. He's now reached his mid-20s having achieved little, living with his mother, spending his days smoking weed, hanging with the guys, and secretly hooking up with his girlfriend Kelsey. But when his mother starts dating a loudmouth firefighter named Ray, it sets off a chain of events that will force Scott to grapple with his grief and take his first tentative steps toward moving forward in life.Canadian Home Video Rating: 14A.MPAA rating: R.DVD ; widescreen presentation ; Dolby Digital 5.1, 2.0 DVS.
Subjects: Comedy films.; Feature films.; Video recordings for the hearing impaired.; Video recordings for people with visual disabilities.; Young adults; Fire fighters; Children of fire fighters; Fathers; Man-woman relationships; Mothers and sons; Grief;
For private home use only.
Available copies: 1 / Total copies: 1
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Gifted [videorecording] / by Duncan, Lindsay,actor.; Evans, Chris,1981-actor.; Grace, McKenna,actor.; Slate, Jenny,1982-actor.; Spencer, Octavia,actor.; Webb, Marc,film director.; Twentieth Century Fox Home Entertainment, Inc,publisher.;
Chris Evans, Mckenna Grace, Lindsay Duncan, Jenny Slate, Octavia Spencer.Frank Adler is a single man raising a child prodigy, his spirited young niece Mary, in a coastal town in Florida. Frank's plans for a normal school life for Mary are foiled when the seven-year-old's mathematical abilities come to the attention of Frank's formidable mother Evelyn, whose plans for her granddaughter threaten to separate Frank and Mary.Canadian Home Video Rating: PG.DVD ; widescreen presentation ; Dolby Digital 5.1, 2.0.
Subjects: Feature films.; Video recordings for people with visual disabilities.; Video recordings for the hearing impaired.; Custody of children; Fathers and daughters; Gifted children; Grandmothers;
For private home use only.
Available copies: 1 / Total copies: 2
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Remedies for sorrow : an extraordinary child, a secret kept from pregnant women, and a mother's pursuit of the truth / by Nix, Megan,author.;
Includes bibliographical references and index."An inspiring memoir and work of fierce advocacy by a mother whose child is born deaf, leading her to investigate and expose a preventable virus that causes more childhood disabilities than any other--but is kept quiet by the medical community. One virus causes more birth defects and disabilities in children than any other infectious disease, yet 93% of Americans don't know it exists. In 2015, after an outwardly uneventful pregnancy, Megan Nix's second daughter, Anna, was born terribly small and failed her newborn hearing test. Megan and her husband learned that Anna is completely deaf and could have lifelong delays due to an infection in the womb with cytomegalovirus, or CMV, a disease Megan unknowingly contracted from her toddler during pregnancy. While doctors warn pregnant women against the risks of saunas, sushi, and unpasteurized cheese, they don't mention that CMV is contagious in the saliva of one out of three toddlers, spread through a kiss, a shared cup, a bite of unfinished toast. Anna's diagnosis led Megan to years of in-depth research, uncovering a shocking fact: obstetricians in the United States are advised not to mention CMV to women during their pregnancies. Unfolding across the dramatic landscape of Sitka, Alaska, where Megan's husband makes his living as a salmon fisherman, Remedies for Sorrow is lyrically written and a searing critique of the paternalistic practice of "benevolent deception" in medicine"--
Subjects: Biographies.; Autobiographies.; Personal narratives.; Nix, Megan.; Abnormalities, Human; Cytomegalovirus infections; Maternal health services; Parents of children with disabilities; Prenatal diagnosis; Virus diseases in pregnancy;
Available copies: 1 / Total copies: 1
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All the money in the world [videorecording] / by Duris, Romain,1974-actor.; Hutton, Timothy,1960-actor.; Plummer, Charlie,1999-actor.; Plummer, Christopher,actor.; Scarpa, David,screenwriter.; Scott, Ridley,film director.; Wahlberg, Mark,1971-actor.; Williams, Michelle,1980-actor.; Sony Pictures Home Entertainment (Firm),publisher.;
Michelle Williams, Christopher Plummer, Mark Wahlberg, Timothy Hutton, Charlie Plummer, Romain Duris.The kidnapping of sixteen-year-old John Paul Getty III and the desperate attempt by his devoted mother Gail to convince his billionaire grandfather to pay the ransom.Canadian Home Video Rating: 14A.MPAA rating: R.DVD ; widescreen presentation ; Dolby Digital 5.1 DVS.
Subjects: Crime films.; Video recordings for people with visual disabilities.; Biographical films.; Feature films.; Getty, J. Paul (Jean Paul), 1892-1976; Getty, Paul, 1956-2011; Getty family; Billionaires; Children of the rich; Kidnapping victims; Ransom;
For private home use only.
Available copies: 0 / Total copies: 1
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In a different key : the story of autism / by Donvan, John(John Joseph),1955-author.; Zucker, Caren(Caren Brenda),1961-author.;
Includes bibliographical references and index."Nearly seventy-five years ago, Donald Triplett of Forest, Mississippi became the first child diagnosed with autism. Beginning with his family's odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism--by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different. It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting "refrigerator mothers" for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families' battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne'eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies--from the question of whether there is truly an autism "epidemic," and whether vaccines played a part in it; to scandals involving "facilitated communication," one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death. By turns intimate and panoramic, In a Different Key takes us on a journey from an era when families were shamed and children were condemned to institutions to one in which a cadre of people with autism push not simply for inclusion, but for a new understanding of autism: as difference rather than disability"--Provided by publisher.
Subjects: Autism spectrum disorders; Autism spectrum disorders.; People with disabilities.;
Available copies: 1 / Total copies: 1
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Only the beautiful / by Meissner, Susan,1961-author.;
"A heartrending story about a young mother's fight to keep her daughter and the winds of fortune that tear them apart, by the New York Times bestselling author of The Nature of Fragile Things and The Last Year of the War. California, 1938--When she loses her parents in an accident, sixteen-year-old Rosanne is taken in by the owners of the vineyard where she has lived her whole life as the vinedresser's daughter. She moves into Celine and Truman Calvert's spacious house with a secret, however--Rosie sees colors when she hears sound. She promised her mother she'd never reveal her little-understood ability to anyone, but the weight of her isolation and grief proves too much for her. Driven by her loneliness, she not only breaks the vow to her mother, but in a desperate moment lets down her guard and ends up pregnant. Banished by the Calverts, Rosanne believes she is bound for a home for unwed mothers, and having lost her family, she treasures her pregnancy as the chance for a future one. But she soon finds out she is not going to a home of any kind, but to a place far worse than anything she could have imagined. Austria, 1947--After witnessing firsthand Adolf Hitler's brutal pursuit of hereditary purity--especially with regard to "different children"--Helen Calvert is ready to return to America for good. But when she arrives at her brother's peaceful vineyard after decades working abroad, she is shocked to learn what really happened nine years earlier to the vinedresser's daughter, a girl whom Helen had long ago befriended. In her determination to find Rosanne, Helen discovers that while the war was won in Europe, there are still terrifying battles to be fought at home"--
Subjects: Historical fiction.; Novels.; Involuntary sterilization; People with disabilities; Teenage pregnancy;
Available copies: 2 / Total copies: 2
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